The First Chemo…
I made it through the first chemo treatment. I think I made it through better than Susan did. She met me at the Institute. We saw the doctor. He said my MUGA Scan came out good…67%…I questioned that…Susan said, “She’s a teacher. 67% doesn’t sound that good.” He said that, in fact, it was quite good. He asked about the previous infection I had at the surgical site the last time I saw him. I said I had taken antibiotics and everything was fine. He checked it to make sure. He answered any questions we had. He said if I had any nausea to just come out there the next day or two and he would shut it down in 15 minutes. That was reassuring. Susan explained about how busy I am, working at school in the daytime and teaching classes at night and asked if there was anything else preventative to keep me from getting sick. The doctor said there was and he would have the nurse give me some samples and a prescription. He said to take two pills (one every 12 hours) for the next two days to prevent nausea. We discussed that I had only a small window of opportunity in my day to be sick. I would only be able to throw up, if necessary, between about 1:30-3:00. Next, we went to the Chemo Room. It was pretty much what I imagined it to be…reclining chairs for patients and other chairs for escorts and some paraphernalia for hooking you up to chemo drugs. Our nurse’s name was also Susan. She had some difficulty with the port and was unable, at first, to get anything started with it. She was working around the bandages. Finally, she said that maybe something was twisted under there, and she took the bandage off. As soon as she moved something, my arm felt better; I think there must have been something twisted. She said she would start with a bag of anti-nausea medication. She began talking about all the possible effects of the drugs. The list was endless, and each new “if this, then that…” sounded worse than the one before. I turned to Susan, my daughter, and said, “Do I have to do this?” And I really meant did I have to do it at all? I meant I want to just get up out of this chair and leave. I’d been through enough all ready…everything that preceded this day, including the port placement less than 24 hours earlier. I’m not sure what happened then, but I think Susan distracted the nurse, Susan; or she distracted me. Either way, the nurse quit going on with all of the possible, horrible things that could happen to me, which I figured was going to be within moments of leaving the building. I then realized that she already had medication going into my body through the port, and it was probably too late to cancel the treatment. I remember Danette telling me that her first chemo was a surreal experience and thinking, “I’m having chemo!.” I would agree with her that it’s certainly not for real. It’s very difficult to explain how your feelings work through all of these experiences. Lately, I’ve been thinking about how children who suffer unmentionable, on-going abuse from a family member or family friend, take themselves out of the experience. Sometimes I think they create another personality that goes through the abuse so that it’s not really happening to them. That’s the way I feel about what I’ve been doing. It hasn’t really been me, not the me I’ve known all my life, because that person could not possibly have endured all of this. The person I know, the real me, who’s scared of the dentist, scared of all things medical including: doctors, nurses, hospitals, procedures, operations, labs, and even medications. That’s why when Krista tells me how strong I am, I deny it, because the person I know to be me has not been going through these experiences. Some other Dottie or, more likely, Dorothy has been doing it for me. Just when things calmed down during the chemo (mostly the talk by the nurse) and I was showing Susan how to play Brainage on my new pink Nintendo DS, all of a sudden, a change happened. The nurse, who was dressed in navy blue scrubs, began to approach our area. She now had on a light blue smock, sort of backwards, tied in the back; and she was putting on blue gloves. She had two scary looking needle-like containers in her hands, and they were filled with a deep, blood-red liquid. I commented about her new outfit, and she replied that it was poison and she couldn’t get it on her. Highly encouraging since she now was going to put that directly into my body through the wide open port. She said that before she would begin, she would get me some ice that I would need to chew on seriously, consistenly without giving my mouth a chance to mellow or relax. Here came the warning/reason: people on chemo develop mouth sores. Chewing on ice while the drug is administered constricts the blood vessels in your mouth area so that, hopefully, the poison doesn’t get into them and cause you mouth sores. I wished I had gone to the bathroom before we started this whole procedure. But, early on, the nurse had said it would only take an hour. She lied. Chewing on ice like there’s no tomorrow is quite uncomfortable for your mouth and also other parts if you didn’t go to the bathroom before you started. She had to hold the container of poison the whole time it was being injected into the IV. I don’t know why they can’t just hang it up on the cart like the other medicines, and I don’t really care; but it made it seem a whole lot more ominous with her sitting in front of me with the blue smock and blue gloves injecting the poison. I finished the ice. She finished the container. I said I could wait to go to the bathroom, but my daughter said that was silly and it would only take a minute and I should go, so I had her come with me. We wheeled the IV cart in with us. When I noted that the nurse had another vial of the poison, she noted that I would have to chew another cup of ice. It had been a gigantic relief to my mouth, gums, tongue, and teeth to have relief from the first cup of ice. We waited for the next cup, and I began chewing; and she began injecting. I don’t know where the part is about reclining in the recliner and relaxing, napping, etc. while you have chemo. That’s pretty hard to do when you’re pounding down two 16 oz cups of ice chips. After the red poison, she hooked up another medication and got that started and left us alone. There was a man there with his wife when we came in. He waited a very long time for a doctor to come in; and we were almost done before he ever got started. Another older man who had a couple of visitors with him had a very long treatment. His friends or family brought him lunch, which he ate, while having chemo. Around the corner was a very young man all hooked up, and he appeared to sleep through it all. Maybe, no ice chips for him. Finally, when we were done, the nurse put a small bandage on the port area and then covered it with transparent bandages and said I could shower and whatever but to keep it covered for the seven days, as they had advised at the hospital the day before. We left. Susan went back to work, and I went home. I prepared for my evening university classes and left. When I say that I made it though chemo better than Susan did that could be because she doesn’t know my trick, the one about how that’s not really me undergoing all these things; it’s some alter ego that I’ve never met who could sit and chew ice chips and talk about Brainage on the DS while having poison inserted into her body through a whole in her arm. So, I understand from Susan’s dad that she called him while I was at my UNLV classes and demanded to know where exactly on campus I was so she could come over there and check on me. He denied knowledge of my whereabouts on campus and told her that he was sitting by the phone ready to come to my assistance if I needed it. We had agreed on that before I left for class; he could be there within minutes, if need be. The next night Susan did come to UNLV and sat through my classes with me. I introduced her as my daughter who was babysit
ting me. My students understood, because they are aware of my situation. I must admit it was comforting to have her there and know that if whatever happened, she could help me out. I think it is not something I should get used to though because I really need to feel that I can continue to function and do what I’ve always done on my own. One of my students turned to me and told me that her mother is an oncology nurse and she told her she couldn’t believe I had come to class the night before (the day of the chemo). So, I think the chemo had a profound effect on my daughter, Susan. I wish it didn’t. I wish I didn’t have to impose these horrendous experiences on the very people I spent my life protecting from horrendous experiences. That is one of the worse things about all of this…what it does to the people who love you…Next time, I’ll explain to Susan to send her alter ego like I do…then it’s all not only surreal, but unreal because it doesn’t really happen to you. I didn’t get physically sick from the chemo, but I certainly got something. I can’t explain it. I didn’t feel good. I didn’t feel right. I tried to drink a lot like the doctor said, but that was hard because I’m not a water drinker or even someone who constantly has to have liquid in their hands. Anyway, I drank as much as I could. I didn’t lose my appetite, but I looked for comfort foods. I found honey on crackers to be pretty rewarding. By the weekend, I was pretty tired. On Sunday, when we went to Starbucks, I knew I wasn’t all right when nothing sounded appealing, not even a vanilla bean or green tea frappuccino. When I literally could not decide on anything to order, I knew I should just go home; and I did. On Wednesday, the eighth day after my first chemo treatment, I knew when I got up that I felt more like myself than I had since the day of the treatment. I realized on that day how really pretty bad I had felt on all the previous days. On the day before I had to have blood drawn from the port. The nurse had some issues with it and said she was going to have to sting me to make sure that it got all cleaned up and didn’t get infected. She said I probably shouldn’t have kept it covered for all those days. Go figure. When she was through stinging me she philosophized about how when you’re in this situation getting poked and prodded is all part of the process. I wanted to say, “Is that all you’ve got? Remember the doctor who inserted four needles directly into the nipple? She couldn’t hold a candle to him. So, bring on the sting, lady; I’ve had worse than you. So that’s the story of my first chemo treatment. I don’t know if I have more than one alter ego or alternate personality, but I can tell you this…one of them better step up for the next treatment because I’m not doing it! When I leave the Institute after the next treatment,uh the same one can come along or another can take over, but I’m not doing those seven days following it either. I’m going to be at a Starbucks enjoying…you know what…not a tall, not a grande, but a damn Venti Vanilla Bean Frappucino and load on the whip! See you there…